BUTTERFLY CHILD #Book to raise awareness of #Epidermolysis Bullosa (EB) #Children…

I just had to share this. Click on the original article to go to Chris’s site and find out all about Ali Pfautz’ campaign to bring the Butterfly Child to life and raise awareness about children with the rare skin disease, Epidermolysis Bullosa (EB). Thanks 🙂

Chris The Story Reading Ape's Blog

Hello Chris and Friends! 

I’d love to take a moment to share a special journey with you.

I am working on my third children’s book, but this one has added meaning.

It’s a story that I hope will raise awareness about a rare skin disease called Epidermolysis Bullosa, or EB.

Children with this devastating condition have very fragile skin that blisters daily.

murrayapril2015-191 (1)

They are known as the butterfly children because their skin is as delicate as a butterfly’s wings.

I’ve written a story, called BUTTERFLY CHILD, to honor the bravery and strength I see in children with EB.

Butterfly Image Scene

Now, I need your help to bring the book to life.

I’ve launched a Kickstarter campaign to get BUTTERFLY CHILD published.

By donating to the campaign supporters can receive different rewards like paperback and hardcover copies, or even get a child’s name written secretly in an illustration.

Just click…

View original post 74 more words

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3 thoughts on “BUTTERFLY CHILD #Book to raise awareness of #Epidermolysis Bullosa (EB) #Children…

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